Tiktok creator confirms death of 6-year-old son: 'He's no longer in pain'

TikTok creator Whitney Frost has confirmed the death of her son Harrison, six.

Harrison suffered from Infantile Neuroaxonal Dystrophy (INAD), a genetic condition that affects motor skills and muscle function. His older sister Riley, eight, has also been diagnosed with the disease. Frost and her husband Jason are also parents to Natalie, 17, who does not suffer from INAD.

Frost posted a video tribute to Harrison on TikTok @dub_frost, along with the caption: "Harrison passed away today at 3.35pm. He went quickly and did not suffer. We are devastated. But glad he's no longer in pain. Thank you for loving him and our family."

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Frost has gained a huge following on the social media platform, sharing her children's struggles with INAD. To date she has 1.7 million followers, and many are devastated at the news.

"From all of us, I think it's safe to say, we are collectively crying with you," one writes. "Never doubt what a wonderful life you gave him. It was full of love."

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"I'm so sorry," comments another. "I'm a silent viewer, but my heart is with you in these heavy times. No words can lift the burden."

Another writes: "I'm picturing Harrison running and playing in heaven. No more pain. No more sickness."

"I know you've prepared for this and kindly prepared all of us for this, but I am still shocked," says another. "Sending your family so much love."

The life expectancy for children with INAD is eight to 12 years.

Frost shared that Harrison had been suffering a urinary tract infection that led to sepsis, and informed her followers he was "not doing great", having developed a gastrointestinal bleed, fever and multiple other complications.

In follow-up videos since announcing her son's death, Frost has admitted she is struggling with her loss.

She also shared the family had decided to donate Harrison's brain for medical research to help children with the condition.

Frost told her followers her eldest daughter is also struggling with the loss of her younger brother and her younger daughter who suffers from the same condition as Harrison is seriously ill.

"Riley's not doing that great," she says. "She has a really bad GI bleed. Her stomach contents are almost black, so that's something that we're worried about. She also has crackling sounds on her lungs.

"She's had to sleep on her side all day so she could breathe better. She had a fever earlier. Her heartrate was up really high. We had to give her morphine a couple of times. I'll keep you guys updated, but I am worried about her."

The mum says family and friends haven't left her side and are helping to care for Riley as she struggles to cope with the devastating loss.

In her most recent video, Frost says they knew Harrison was approaching death and had met with funeral directors. Despite this she says they thought they had "weeks or months left" with him, only for him to pass away just days later.

Frost has thanked her followers for their support, saying she sometimes feels "so alone".

"Thank you for loving him and our family," she said.

A crowdfunding page has been set up for the family, with donations going towards funeral costs and other expenses.