Charlotte died eight years ago. Her videos are still getting millions of hits

Alex Eades is haunted by the death of her daughter Charlotte, not just because the teenager predicted she had a brain tumour months before she was diagnosed, but also due to the cruelty of the disease.

"I can remember Miles (Charlotte's brother) and I telling her that she ought not to worry as, we thought naively, there would be far more obvious symptoms if a brain tumour was present," Alex says.

Her condition continued to worsen. Then on the morning of July 13, Charlotte ran to the toilet and was violently sick.

Watch the video above.

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"Charlotte called me saying she felt very ill with pain now originating from behind her eyes," Alex says.

"I drove straight home and, once again, made the trip to the hospital."

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It wasn't until a doctor checked her optic nerve that swelling was found and tests ordered.

Alex was told Charlotte would be admitted into hospital overnight and it was suggested she go home to rest. She was restless, and at 4am woke to see her phone "flooded with texts from Charlotte".

She stayed with Charlotte until the results of the tests came back. It was a brain tumour, as Charlotte had been saying all along.

Alex recalled walking back to Charlotte with tears in her eyes. Charlotte took one look at her and said: "I told you I have a brain tumour."

Her treatment was brutal. The tumour was inoperable as it was on the brain stem, and a spinal biopsy was performed. She was taking about 50 tablets a day; many of them to counteract the side effects of the other drugs.

"It's so hard to put into words how it makes you feel knowing that your child is seriously ill," Alex explains. "I think the question I asked most often was, 'Why Charlotte?' I knew nothing about brain tumours."

She underwent gruelling treatment throughout 2013 which included radio therapy and chemotherapy. She suffered seizures, struggled to eat and experienced deafness in one ear.

Her balance was also impacted and she made use of a wheelchair.

The following year was a little better. Charlotte's treatment continued, however she felt well enough to do normal, everyday activities such as shopping.

She also started a YouTube channel chronicling her health battle which quickly grew in popularity. Charlotte also made several TV appearances through the year.

In July 2015 the family was dealt another blow. A second brain tumour was found and Charlotte was given an additional diagnosis of grade four glioblastoma.

Her treatment would now focus on extending her life instead of saving it and included a clinical trial.

"As Charlotte's cancer grew, her life unravelled in the slowest and cruelest way," Alex says.

By Christmas 2015, Charlotte's speech was beginning to slur and she was falling over more regularly. She was unable to move unaided and she experienced rapid weight gain due to the medication she was taking. Her vision in one of her eyes deteriorated before eventually the eyeball became stuck cross-eyed."

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She woke up one morning in January 2016 unable to curl her toes and within 24 hours was paralysed down her right side.

Charlotte's cancer was now terminal. She asked her mum if she'd ever marry, or have babies. They held each other and cried.

Charlotte died six days after her 19th birthday.

Following Charlotte's death, Alex and Miles started a charity called Charlotte's BAG (Battle Against Glioblastoma) which aims to raise funds for cancer research at a hospital in which she was treated.

"At the moment, we are funding research with the aim to improve the accuracy of biopsy and the speed at which biopsy results are returned to clinicians and patients," Alex explains.

"Charlotte's spinal biopsy results did not return until after she had died. Improving the speed at which results are available to clinicians, as well as their accuracy, leads to faster and more targeted treatments."

Alex also keeps Charlotte's memory alive by continuing to run her YouTube channel which now has 70,440 subscribers around the world and tens of millions of views.

"Charlotte is the best ambassador for the charity we could have asked for. Her message of positivity and stoicism continues to be heard worldwide," Alex explains.

"For us, it is a reminder of Charlotte's bravery and what she went through. We think it's important that people know about Charlotte and her journey. She was just an ordinary young woman with her whole life ahead of her. We created our charity with the mission that, one day, no one would have to suffer again like Charlotte did."

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