Toddler dies rare condition 20190626 p5q2gg.html – Breaking News & Latest Updates 2026
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This was published 7 years ago

Miracle toddler dies after childhood battle with dementia

Jo Abi
Jo Abi

Mirryn Cunningham was just two when she was left devastated by a chromosome disorder which damaged her brain.

Tragically, Mirryn died in her mother's arms on Sunday near their home in Scotland.

The condition left the little girl with dementia due to brain damage.

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Her mother, Vicky, told BBC Scotland said her daughter fought "hard for a long time".

The toddler suffered from a rare disorder.

The toddler suffered from a rare disorder. BBC

"She was getting her favourite story and she was being cuddled by mum and she just put her head on me and took her last breath, a big massive breath and that was her," Vicky said.

"No pain anymore, no medication, no drops, no oxygen," she added. "Just Mirryn."

The toddler died at a children's hospice in Scotland where she had been for the past eight weeks.

"We just made all the memories we could make. We took her out when we could and took her to Deep Sea World and we had tea parties and sleepovers," she said of their time together.

Vicky cared for her daughter in hospice.

Vicky cared for her daughter in hospice. BBC

Mirryn suffered from CLN1 Battens, which affects the nervous system and causes problems with vision, movement, and thinking.

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She required round-the-clock care and was fed through her stomach.

Mirryn was born at 31 weeks and two days and developed normally until she was 10-months when she stopped being able to grip things properly.

MRI scans in January this year confirmed CLN1 Batten disease, often known as childhood dementia.

Batten Disease is quite rare, occurring in only 2 to 4 of every 100,000 births in the United States, but appearing more regularly in Finland, Sweden, other parts of northern Europe.

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