World down syndrome day mums message for son 20220327 p5qen2.html – Breaking News & Latest Updates 2026
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This was published 4 years ago

Mum's heartfelt message to celebrate son with Down syndrome

Rebecca Holland

Happy World Down Syndrome Day! Particularly to all those who also have a family member rocking an extra chromosome.

Oh how we worried when Ben was first born... Would he talk? Walk? What medical issues would he have? How would it affect his brother (and then brothers!)?

Would he have friends? Could he go to mainstream school? Live independently? Were we to be carers for the rest of our lives?

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Rebecca with her husband and four sons

Rebecca with her husband and four sons Supplied

Ten years on... Ben attends mainstream school with his brothers and LOVES it! He plays cricket and footy with his schoolmates (including filling in for under 14s!). We have been lucky that he has had no medical issues and never been hospitalised for illness.

The biggest issue with his speech is how LOUD he is and his current obsession with swearing. His love/hate relationship with his brothers is the same as they all have!

Friends? Pretty much the most important thing in his life (other than Charlie Bucket the dog and his dad!). He already has plans to move out and live with them!

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Baby Ben

Baby Ben Supplied

Are the days harder sometimes because Ben has Down syndrome? Is there more work because he has a disability? Well... yes and no. Now that we have four boys, each with their own challenges, skills and needs I really don't know how much more is because of Down syndrome.

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There are moments that each of them need MORE - time, support, energy. They each have their own exceptionalities and quite often Down syndrome is a smaller issue for us than some of the other gifts!

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Down syndrome is just one part of who Ben is and I don't know how we separate his disability from who he is. It can be tough for Ben as he works SO hard to keep up with his friends, with his school work, with understanding everything.

But he is a superstar and gives it everything for the things he loves. Let's not talk about that stubborn gene when he doesn't want to do something though!

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Down syndrome has given us a ticket to become part of an amazing community and meet some awesome people. It has made me more aware of ableism, of my own biases and what actually makes up a good life.

Ben goes to mainstream school with his brothers

Ben goes to mainstream school with his brothers Supplied

It is within my wonderful boy... who will finally let me kiss him goodnight! So 10 years on, many of those worries are gone.

There will continue to be challenges and I appreciate and thank those fighting to make the world better for our children.

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But if you were to ask Ben he'd say he has a great life... although it would be better if we let him play Minecraft more!

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