At just 10-weeks-old, no one expected Huey's noisy sleeping and snoring could be cancer

At just 10-weeks-old, nobody expected Huey's noisy sleeping and snoring could be something sinister.

His mum, Jill May, had a normal pregnancy and the little boy was born full-term and perfectly healthy. However, after six weeks, the Sydney mum-of-two started feeling uneasy.

"His demeanour started to change and he started to get very clingy and unsettled", Jill tells 9Honey Parenting. "He also started snoring, had bright green poo and you couldn't put him down. And every now and again he would let out a high-pitched squeal."

Jill took him to numerous doctors and the local community nurse, but Huey's symptoms were dismissed as typical newborn behaviour and then reflux.

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Eventually, when he was 10-weeks-old, a GP sent Jill to a paediatrician as Huey hadn't put on any weight.

"We got tacked on to a 5pm appointment on a Monday night because the doctor was about to go away," she recalls. "And that was the moment our world turned upside down."

The paediatrician started measuring Huey's abdomen and neck, and Jill recalled he got 'very flustered' - and kept walking in and out of the room.

"He sat us down and looked at us and said: 'There is no easy way to say this. Your baby has cancer. You need to go immediately to the Sydney Childrens' Hospital in Randwick - they are expecting you'."

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"I can only describe what happened next as an out of body experience," Jill reveals. "We were completely blindsided and in shock. We thought we would just be told to increase his reflux medication. That car ride to the hospital was... just awful."

Baby Huey underwent every type of test and by Wednesday doctors confirmed a devastating diagnosis - Stage 4 Neuroblastoma. Huey had put in a central line to commence chemotherapy immediately.

Not only did Huey have an inoperable tumour encasing his carotid artery in his neck, which was impeding his breathing, the tumour spread to his liver, causing it to swell five times its normal size.

"I remember standing in my backyard and feeling so isolated," she explains. "I didn't know anyone with a child with cancer, It was so traumatic, I don't think I'll ever really get over it."

Neuroblastoma is the most common solid tumour of childhood. It is almost exclusively a childhood cancer occurring most commonly between the ages of zero to five.

It turns out, the little boy was in enormous amounts of pain and discomfort as the tumour pushed his organs down to his groin and there was a real risk of liver failure.

For the next eight months, Huey underwent rounds of chemotherapy and countless blood transfusions.

Today, Huey, now aged four is happy and healthy and is being monitored every six-months by his team of doctors to ensure the cancer doesn't respread.

"Our beautiful son was so small when diagnosed yet his cancer was so far advanced," Jill recalls.

"We nearly lost our beautiful newborn boy but thanks to the continued research into treatment options, Huey is still here and thriving."

"In fact, Huey is a real firecracker and a joker," she adds, explaining that Huey has an expressive speech delay as a result of the cancer so often resorts to humour to communicate.

Jill is sharing her story to raise much-needed awareness and funds for the Childhood Cancer Institute.

"We need to keep the research going so the treatments can stay targeted to help future kids. I don't want any more families going through what we did."

CEO Dare to Cure brings together leading CEOs and business leaders from across Australia to face a fear by taking on a dare, and at the same time, help cure childhood cancer.

To make a donation, visit ceodaretocure.org.au